Emma Pablo
Hypoplastic Left Heart Syndrome (HLHS)

When I was 18.5 weeks pregnant we found out that our daughter had something wrong with her heart. At 22 weeks we visited ACH for the first time and met Dr. Huhta, Lori, and Jenny. They explained to us that Emma had a single ventricle and would need a heart transplant or a series of 3 open heart surgeries. Since her right ventricle was still in good shape it was recommended to do the 3 stage surgeries..Read More

Jonah
Aortic Stenosis
When Jonah was born on Sep. 23, 2002 they told us he had Aortic Stenosis which is a deformed aortic valve. Instead of three flaps opening and closing he had two so the blood flow was constricted...Read More

Joshua Owen Henley
Tetralogy of Fallot

Joshua Owen Henley was bon on February 6, 2006.  Because Josh was an IVF baby as well as our ages, our pregnancy was monitored closely.  Only because we had a level II ultrasound did we find out that Josh was going to be born with a heart defect...Read More

Katrina Ashley Dwan
Single Ventricle & Transposition of the Greater Vessels

Katrina Ashley Dwan was born December 7, 2005 at 7:37 a.m. and weighted 7lbs 7 oz. We call her our Lucky Sevens. She was born with a single ventricle and transposition of the greater vessels...Read More

Tommy
Tetralogy of Fallot

The year was 1991 when I found out I was pregnant. I was told that when you finish your first trimester of pregnancy, you were “home free”. This did not ring true for me...Read More

Sophie Sanders
Tricuspid Artesia/Interrupted Aortic Arch/ASD

Sophie Sanders was born on Sept 29, 2005. The pregnancy had gone fine and we were told by the doctors she was perfect and had no medical issues...Read More

Olivia Rae Masengale
Truncus Arteriosus Type I/DiGeorge Syndrome

Olivia was born on January 25, 2006 at Lakewood Ranch Women’s Center. She weighed in at an unsuspecting 3lbs 9oz. She was transferred to All Children’s Hospital in St. Pete, FL the same day for precautionary testing to see if a reason for her lack of size could be determined...Read More

Hunter Mac
Coarctation of the Aorta

Hunter Mac was born on February 17, 2006. A perfect little boy inside and out. Our pediatrician came to do a routine check up at the hospital for her new babies that morning after he was born and when Hunter was checked she let us know that she heard a heart murmur in him and wanted to have an EKG done on him later that afternoon...Read More

Michelle Hanson
Transposition of the Great Vessles/Enlarged Pulmunary Artery/Single Ventricle

Hi, I am Michelle Hanson and I am one of the "old guys" who joined Mended Little Hearts to give, hopefully, a little inspiration to the younger CHD patients and their parents...Read More

Emily June Merkle
Ostium Primum Atrial Septal Defect

Emily was born on April 28, 2006, beautiful and pink. Everything went smooth and normal until she was about nine months old. She stopped gaining weight, we even had blood work done to check her growth hormones but it came back normal....Read More