Kaelyn
Hypoplastic Left Heart Syndrome.

My daughter, Kaelyn, was born in May 2004, and for the first week of her life, everything was perfect. That all changed when she was just 8 days old. All day, Kaelyn seemed very weak and after not eating anything for nine hours I knew deep inside that something was very wrong. We rushed Kaelyn to the Emergency Room and that night changed our lives forever... Read More

Ashlyn
Double Outlet Right Ventricle (Tausig-Bing)

I had Ashlyn on a Thursday in September, 2008 at Peace River Regional Medical Center in Port Charlotte , FL. She was just fine, eating well and alert. When we went to be released on Friday, they wanted to keep her because she was running a fever. They ran blood work on her and a culture to see what was causing the fever. She stayed in the room with me until I went home on Saturday... Read More

Emma
Hypoplastic Left Heart Syndrome (HLHS)

When I was 18.5 weeks pregnant we found out that our daughter had something wrong with her heart. At 22 weeks we visited ACH for the first time and met Dr. Huhta, Lori, and Jenny. They explained to us that Emma had a single ventricle and would need a heart transplant or a series of 3 open heart surgeries. Since her right ventricle was still in good shape it was recommended to do the 3 stage surgeries..Read More

Jonah
Aortic Stenosis
When Jonah was born in September, 2002 they told us he had Aortic Stenosis which is a deformed aortic valve. Instead of three flaps opening and closing he had two so the blood flow was constricted...Read More

Joshua
Tetralogy of Fallot

Joshua was bon in February, 2006.  Because Josh was an IVF baby as well as our ages, our pregnancy was monitored closely.  Only because we had a level II ultrasound did we find out that Josh was going to be born with a heart defect...Read More

Katrina
Single Ventricle & Transposition of the Greater Vessels

Katrina was born in December, 2005 at 7:37 a.m. and weighed 7lbs 7 oz. We call her our Lucky Sevens. She was born with a single ventricle and transposition of the greater vessels...Read More

Tommy
Tetralogy of Fallot

The year was 1991 when I found out I was pregnant. I was told that when you finish your first trimester of pregnancy, you were “home free”. This did not ring true for me...Read More

Sophie
Tricuspid Artesia/Interrupted Aortic Arch/ASD/VSD

Sophie was born in September 2005. The pregnancy had gone fine and we were told by the doctors she was perfect and had no medical issues. We brought her home the next day. She was not eating well from start...Read More

Olivia
Truncus Arteriosus Type I/DiGeorge Syndrome

Olivia was born in January, 2006 at Lakewood Ranch Women’s Center. She weighed in at an unsuspecting 3lbs 9oz. She was transferred to All Children’s Hospital in St. Pete, FL the same day for precautionary testing to see if a reason for her lack of size could be determined...Read More

Hunter
Coarctation of the Aorta

Hunter was born in February, 2006. A perfect little boy inside and out. Our pediatrician came to do a routine check up at the hospital for her new babies that morning after he was born and when Hunter was checked she let us know that she heard a heart murmur in him and wanted to have an EKG done on him later that afternoon...Read More

Michelle
Transposition of the Great Vessles/Enlarged Pulmunary Artery/Single Ventricle

Hi, I am Michelle and I am one of the "old guys" who joined Mended Little Hearts to give, hopefully, a little inspiration to the younger CHD patients and their parents...Read More

Emily
Ostium Primum Atrial Septal Defect

Emily was born in April 2006, beautiful and pink. Everything went smooth and normal until she was about nine months old. She stopped gaining weight, we even had blood work done to check her growth hormones but it came back normal....Read More

Cam
Pulmonary Atresia

Hi! I'm Cam. I am thirteen years old. I was born with a Congenital Heart Defect called Pulmonary Atresia. Pulmonary Atresia is when your Pulmonary Valve is closed off or completely gone. In my case, it never formed,....Read More